Wisdom of Life

Newly Diagnosed

If you have been newly diagnosed with MSA, you may find the following helpful:

 

  • Please try not to read everything you see about MSA – you may become overwhelmed
  • Try to see your neurologist/specialist every six months for review
  • If your neurologist/specialist hasn’t already done so, ask your GP to refer you to a physiotherapist, an occupational therapist and a speech and language therapist. You may also wish to ask for a referral to a continence nurse advisor if you are experiencing bladder or bowel issues. If your GP isn’t familiar with MSA, please feel free to have them contact us. You may want to email these to them, or download our brochure or details for passing on to them the next time you see them.
  • You will find that many professionals are unfamiliar with MSA as it is a rare illness. If you let us have details of professionals involved in your care, we can send them some information. Please register and request for such services.
  • If you do not wish to become a member but would still like us to forward details about MSA to your health professionals, we can still do this. please feel free to contact us.

Please remember that not everyone with MSA will have all the symptoms listed on our website. Everyone living with MSA is individual. There are lots of things we can help you, and your carer and family members with, you can contact us for more information.