We had the oppportunuty to discuss with Ms. Tade, a social worker from the Lagos Teaching Hospital (LUTH) who has been the liason personnel for our collaboration with the Movement Disorder Clinic in the hospital. She gave us a remarkeable progress report about our...

Kindly tell us a bit about yourself and your husband.My name is Abiodun and my husband's name is Abayomi, I am a Nurse. My husband worked for an Insurance company before its closure, and he became unemployed.   Kindly share his story with us briefly, from getting...

Receiving a diagnosis of Multiple System Atrophy (MSA) can be a difficult and emotional experience. It can be hard to come to terms with the fact that you have a rare, progressive neurological disorder that has no cure. However, accepting the diagnosis is an important...

While there is no cure for MSA, there are treatments available that can help manage the symptoms and improve the patient's quality of life. Here are some of the common treatments for MSA: Medications Medications can help manage the symptoms of MSA. For example,...

Hi Reader, if this is your first time here, we are pleased to have you and would like to introduce ourselves. We are a registered Nigerian Non-Profit Organization set up in 2013 in memory of the late Mrs. Funmi Fashina whom we lost to Multiple System Atrophy (MSA)....

Living with multiple system atrophy (MSA) can be a challenging and difficult experience. MSA is a rare and progressive neurological disorder that affects the central nervous system, leading to a decline in various functions such as movement, balance, and autonomic...

Funmi was a very reserved and unassuming lady with a smile for all occasions whether good or sad. Funmi and I first met in the old Arthur Young, the firm that later merged with Ernest and Whinny to form the now EY (Ernest and Young). We were both training to become...

Types & Symptoms of MSA MSA is broken down into two main subtypes based on the predominant symptom: MSA-predominant Parkinsonism (MSA-P), and MSA-predominant cerebellar ataxia (MSA-C). A patient diagnosed with MSA-P may over time appear to have MSA-C and vice...

GENETIC MSA-MIMICKING DISEASES,  SUBTYPES & OTHER DISORDERS Ataxias Spinocerebellar Ataxias (Genetic Forms) Dentatorubral-pallidoluysian atrophy (DRPLA) fragile X-associated tremor/ataxia syndrome (FXTAS) Friedreich Ataxia (FRDA) Ataxia-oculomotor apraxia syndrome...

Are you uncomfortable being around terminally ill family and friends? Here are some tips on visiting with a loved one. Like many people I used to be afraid to be around a friend or family member who was terminally ill. I was uncomfortable, I didn’t know how to act,...

“Although the exact cause of MSA is unknown, a lot is known about the changes in the brain that occur when someone develops MSA. In other words the picture is not as bleak as that initial stark statement implies. MSA is a neurodegenerative disease, meaning that there...

As the care partner for someone living with Multiple System Atrophy, like it or not, you are going to find yourself teaching many people about what this disease is. It will start with yourself, as you begin to realize the wide-reaching implications of this illness....

One of the challenges patients endure is the lack of awareness and knowledge about MSA in the medical community. Early diagnosis is missed or often misdiagnosed, causing months, even years, of anguish to find answers. Once a diagnosis is made, the different...

Summer is a welcomed season after the long winter months. With warmer weather, it is important to protect yourselves from overheating, especially on days that are hot and humid. A common symptom in MSA is heat intolerance. This is caused by the body’s inability to...

Multiple system atrophy (MSA) is a rare condition of the nervous system that causes gradual damage to nerve cells in the brain. This affects balance, movement and the autonomic nervous system, which controls several basic functions, such as breathing, digestion and...