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DISEASES THAT MIMIC MSA

DISEASES THAT MIMIC MSA

GENETIC MSA-MIMICKING DISEASES,  SUBTYPES & OTHER DISORDERS Ataxias Spinocerebellar Ataxias (Genetic Forms) Dentatorubral-pallidoluysian atrophy (DRPLA) fragile X-associated tremor/ataxia syndrome (FXTAS) Friedreich Ataxia (FRDA) Ataxia-oculomotor apraxia syndrome...

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The Importance of showing up & trying

The Importance of showing up & trying

Are you uncomfortable being around terminally ill family and friends? Here are some tips on visiting with a loved one. Like many people I used to be afraid to be around a friend or family member who was terminally ill. I was uncomfortable, I didn’t know how to act,...

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Is there an explanation for MSA?

Is there an explanation for MSA?

“Although the exact cause of MSA is unknown, a lot is known about the changes in the brain that occur when someone develops MSA. In other words the picture is not as bleak as that initial stark statement implies. MSA is a neurodegenerative disease, meaning that there...

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Raising MSA Awareness

Raising MSA Awareness

As the care partner for someone living with Multiple System Atrophy, like it or not, you are going to find yourself teaching many people about what this disease is. It will start with yourself, as you begin to realize the wide-reaching implications of this illness....

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Awareness will surely bring some hope

Awareness will surely bring some hope

One of the challenges patients endure is the lack of awareness and knowledge about MSA in the medical community. Early diagnosis is missed or often misdiagnosed, causing months, even years, of anguish to find answers. Once a diagnosis is made, the different...

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How to handle the heat

How to handle the heat

Summer is a welcomed season after the long winter months. With warmer weather, it is important to protect yourselves from overheating, especially on days that are hot and humid. A common symptom in MSA is heat intolerance. This is caused by the body’s inability to...

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What is MSA

What is MSA

Multiple system atrophy (MSA) is a rare condition of the nervous system that causes gradual damage to nerve cells in the brain. This affects balance, movement and the autonomic nervous system, which controls several basic functions, such as breathing, digestion and...

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